I know it has been a while since I have posted anything, and I know that I have three wonderful excuses, but still I need to make more time to keep this updated. The past few months have been very busy for us, as a family, I had been going to school at night, Clint was still traveling but that had slowed down a bit, due to the fact that he had a little issue with melanoma. Clint is doing fine now we were sent down to the best place to handle the problem, down to MD Anderson. For everyone who did know what was going on at the time, thank you for all the support and prayer through those few months. The doctors were able to get all the melanoma out and no additional work was needed. Though he does have HUGE scare on his back, but we are grateful that it had not spread, it could have been a lot worse than it was. We are so grateful to be so close to some of the best hospitals in the world!!
Christmas at the Jasper house was very fun this year, because the boys were so excited about Christmas! It was so great to see there faces as they opened their presents, though they got so much stuff, mommy had to give a lot of stuff away, I think they are a bit spoiled.
We have found out a few things with Hudson this past week. Every year Hudson has to go down and have a check up with his genetic doctor downtown at Texas Children's. My mom and I took him down last Monday, I expressed concern that I didn't think that he was growing very much, the doctor thought the same, and had us go and have another skeletal survey done. Hudson didn't seem to like that too much so after having about thirty x-rays, he was very excited to get his usual bagel at the hospital and go home. Last Wednesday I called down to see if they found any information on his x-rays, and they have now diagnosed him with sponeyloepiphyseal a skeletal dyspepsia, (SEDC) which is a rare form of dwarfism. This off course came as a bit of a shock to Clint and I, we knew that he was going to smaller than the other boys, but we didn't know he had dwarfism. We know that he is going to have some challenges, but we feel so blessed that we are able to have him has a healthy boy! He has come so far!!
This past Sunday, we off course were running late for church, and the message was so timely, that God is Bigger than our problems, which is so true, I feel so much peace and so grateful for Hudson I know that God has BIG Plans for him, and he has been such a blessing in our life and I know in the many lives around him.
As I find out more on his new diagnosis, I will post more, as of now we go and down to TCH in March to meet with the team of Doctors that specialize in dyspepsia
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5 comments:
You have a beautiful family! I'm so glad everyone is HEALTHY and HAPPY! (the boys sure look happy in the photo) so cute!
You have a beautiful family!!! Sending plenty of prayers your way!! I had no idea about Clint. I did however get to sit in on Sunday...in Adventureland....and your boys make me smile...they make my heart smile! Your right, God is bigger than any problem and he does have BIG plans for Mr. Hudson!! I will be praying for you and your family.
Monica Morris
hey Shannon, I had no idea what you and Clint were going through with his health, and I am SO glad he is doing well! Hudson looks so happy in all of the pictures you post of him! I know that you guys are the best parents he could have, and we are praying for ALL of you!
Hey Shannon, I am so glad everything worked out well with Clint... and scars are ok I have a few as well. Just try to think of them as a reminder of the healing power of our great God! I have been thinking about Hudson a lot and I will keep him in my prayers for years to come. Like the rest of your boys I look forward to watching them grow. I really feel in my heart God has special plans for Hudson... he was a such a gift and has overcome so much already in his little life. I believe he will amaze us in years to come! You guys are great parents and I am so thankful to have met you.
Hello Shannon-
Your boys are adorable! Hudson is so cute. Of all the SED boys I have seen, your son seems the most like mine. I can't believe it took them so long to diagnosis your son.
I would love to talk to you about SED. It's kinda funny when it comes to dwarfism (especially SED) the medical field really can't tell you much. I learned most of what I have come to know by other mothers. Where do you live? You are welcome to call me or email me anytime!
Brookedalling@gmail.com
801-787-7764
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