Friday Hudson and I went down to meet with the skeletal dysplasia group at Texas Children's, they are definitely saying that Hudson does have the Spondyloepiphyseal type of dwarfism, but does not appear to be that bad! Hudson was originally diagnosed with Sticklers syndrome, but now they are re-diagnosing him with dwarfism, they have a lot of the same issues, but that he will be a bit shorter. The doctors wanted us to have some more x-Rays of his spine, and they want to monitor him on a yearly basis. Monday he and I went down again to TCH to see his plastic surgeon that corrected his cleft palate, the palate had opened slightly and we were worried he would need another surgery soon. I also was concerned because he isn't really talking much and when he does say his few words they are sounding very nasally. But the doctors didn't seem to be too concerned and said the would re-evaluate him next year. So all good news!
Clint came home on Monday night, he was only gone a week, but it felt like so much longer. I think because he doesn't travel as often that when he does go it seems so LONG! Tuesday we spent the day as a family and took the kids to seven acre woods to run around and play before the rains came in. The evening we spent with Clint's family again, so the kids went to bed very late, and they are a bit tired today!
Trying to get everyone to get a picture
No comments:
Post a Comment